Abstract

6.Living with a Tube: Psychosocial Burdens of Tracheostomy on Patients and Families. A Systematic Literature Review
Amna Bakhtawar and Saima Ahmad
Living with a tracheostomy presents a range of emotional, social, and mental health challenges for both patients and their caregivers. This systematic literature review synthesizes recent studies (2015-2025) to explore the psychosocial burdens of tracheostomy care. It identifies key areas of distress, including emotional struggles such as anxiety and depression, social isolation due to communication barriers, and the physical and psychological strain experienced by caregivers. Financial toxicity and caregiver burnout were also significant issues highlighted across studies. The review emphasizes the need for integrated care approaches that address both the physical and psychosocial needs of patients and caregivers. It calls for comprehensive support systems, including psychological services, caregiver education, and social support networks, to alleviate the burden of tracheostomy care. Findings suggest that healthcare professionals should focus on both medical management and psychosocial well-being to improve the overall quality of life for individuals living with tracheostomies and their families. Keywords: Tracheostomy, Psychosocial burden, Caregiver burden, Quality of life, Depression, Anxiety, Social isolation, Communication barriers, Caregiver burnout, Mental health, Emotional distress, Integrated care, Caregiver education.